Parkinson Speaker Series

On the 14th of every month, a member shares their story with use. Some background about where they come from, notable bits from their past, early symptoms, and their experience with diagnosis. Even more importantly, we get to learn from their journey since diagnosis- what they've learned, insights they've gleaned, and pearls of wisdom for the rest of us.

Inspired by the AA Speaker Series, the program is designed to bring us closer together and learn from one another.

Barbara, a 60-year-old retired teacher, shared her journey with managing Parkinson's disease, onset by the stress of losing close family members and potential environmental factors. Here are the key points from her story:

• In 2013, Barbara noticed tremors and was concerned about having ALS.
• She engaged in various activities like Rock Steady Boxing, the New England Parkinson's Ride, and kayaking to stay active.
• Barbara began treatment with medications like Azilect, Artane, and Sinemet.
• She chose not to disclose her diagnosis to colleagues until later in her career.
• By April 2021, at age 60, Barbara decided to retire due to fatigue exacerbated by COVID-19.
• Barbara experienced progression in tremors post-COVID-19 vaccination but managed them with medical care.
• She saw significant progression in falls, leading to increased medication and physical therapy.
• Barbara's daughter, a neuro PT, facilitated tailored workout sessions for her Parkinson's management.
• Barbara maintains an active lifestyle with a variety of exercises from PT routines and biking to Zumba and yoga.
• She adapted her diet, exercise regimen, and medications over time, such as managing urinary incontinence and foot pain.
• Barbara currently takes a range of medications and supplements in a structured daily routine.

Barbara's story emphasizes the importance of staying active, adapting to changing health needs, and seeking individualized care to manage Parkinson's disease effectively.